THE CAREGIVER GUIDES / BASELINE
How to describe a baseline after brain injury
A practical way to describe everyday abilities, preferences and support needs after brain injury, including what varies and what helps.
What is usual for this person
An everyday baseline describes the person's usual activities, abilities, preferences and support. Rehabilitation guidance calls for attention to what matters to the individual and how functioning varies across settings and days (National Institute for Health and Care Excellence [NICE], 2025).
Begin with the person's own account: what they enjoy, what feels manageable and how they want help. Ask one question at a time and leave space for answers. Following TBI, some people need more processing time or fewer distractions (Neumann & Lequerica, 2020).
Describe activities and the support around them
Choose one familiar activity. Record what usually happens, the setting, the support used and the person's preference. For example: “Jordan usually follows a short conversation with one person in a quiet room. Prefers time to answer and a written reminder of the plan afterward.” This is an illustrative description.
Communication rehabilitation guidance for moderate-to-severe TBI emphasizes personally relevant contexts and communication-partner support (Togher et al., 2023). Describe the actual interaction, including what helps someone take part.
Record the aids already used, such as reminders or written steps. INCOG's memory guidance emphasizes matching strategies to individual functional needs (Velikonja et al., 2023). Note which established aids the person uses and how they help.
Include variation and what helps
Ask what a good day means to the person and what becomes harder on a difficult day. VA caregiver guidance recognizes day-to-day variation after TBI (U.S. Department of Veterans Affairs [VA], 2025).
Include relevant context without assuming a cause. Fatigue can affect attention and communication after TBI (Bell, 2024). Sleep difficulties can also affect daytime functioning (Greenwald & Bell, n.d.). Record what was observed and what the person reported.
Date the description, identify contributors and keep earlier confirmed versions available. When accounts differ, retain their circumstances. This keeps the record's history understandable.
A starting prompt
“What would someone need to know to support you well tomorrow?” Add one concrete example, the help offered and the person's preference. Build the account over several conversations if that works better.
How this connects to KnownAtArrival
KnownAtArrival is developing guided voice conversations, with a planned typing option, to help organize baselines. Its six planned areas are thinking and memory, communication, behavior and regulation, movement and balance, symptoms and fatigue, and alertness and sleep. These are the product's organizing categories.
The app is in development. Join the interest list for development updates.
SOURCES
References
Bell, K. R. (2024). Fatigue and traumatic brain injury. Model Systems Knowledge Translation Center. https://msktc.org/tbi/factsheets/fatigue-and-traumatic-brain-injury
Greenwald, B., & Bell, K. (n.d.). Sleep and traumatic brain injury. Model Systems Knowledge Translation Center. https://msktc.org/tbi/factsheets/sleep-and-traumatic-brain-injury
National Institute for Health and Care Excellence. (2025, October 15). Rehabilitation for chronic neurological disorders including acquired brain injury (NICE Guideline NG252). https://www.nice.org.uk/guidance/ng252
Neumann, D., & Lequerica, A. (2020). Cognitive problems after traumatic brain injury. Model Systems Knowledge Translation Center. https://msktc.org/tbi/factsheets/cognitive-problems-after-traumatic-brain-injury
Togher, L., Douglas, J., Turkstra, L. S., Welch-West, P., Janzen, S., Harnett, A., Kennedy, M., Kua, A., Patsakos, E., Ponsford, J., Teasell, R., Bayley, M. T., & Wiseman-Hakes, C. (2023). INCOG 2.0 guidelines for cognitive rehabilitation following traumatic brain injury, Part IV: Cognitive-communication and social cognition disorders [Abstract from PubMed]. The Journal of Head Trauma Rehabilitation, 38(1), 65–82. https://doi.org/10.1097/HTR.0000000000000835
U.S. Department of Veterans Affairs. (2025, March 3). Caregiving tips: Traumatic brain injury (TBI). https://www.caregiver.va.gov/CAREGIVER/Tips_by_Diagnosis/TBI.asp
Velikonja, D., Ponsford, J., Janzen, S., Harnett, A., Patsakos, E., Kennedy, M., Togher, L., Teasell, R., McIntyre, A., Welch-West, P., Kua, A., & Bayley, M. T. (2023). INCOG 2.0 guidelines for cognitive rehabilitation following traumatic brain injury, Part V: Memory [Abstract from PubMed]. The Journal of Head Trauma Rehabilitation, 38(1), 83–102. https://doi.org/10.1097/HTR.0000000000000837